Who it's forFor parents
You just heardthe news.
If your baby was just diagnosed with a cleft lip and palate, or born with one, we've been where you are. Brandon was rushed away right after he was born. His mom, Karen, wrote a book for parents like you.
What we offer
For you.
Don't Despair, Cleft Repair!
Karen's book for parents, written after Brandon's first surgeries.
My Puzzling Smile
For your child as they grow, to explain their smile in their own words.
Stories from families
Parents who have been on this side. [story library TBD]
What we wish someone had told us
- Your child's medical team leads on care. Ask them everything, as often as you need.
- It's okay to feel scared. The gray cloud is real.
- There is a silver lining. The baby who was rushed away at birth wrote a book in kindergarten.
"In every cloud there is a silver lining."
Karen Lipman, Don't Despair, Cleft Repair!
The gap is smaller than you think.
Next: for family members